Use mindful person-first language
Instead of referring to someone as an “PsA patient” use “person living with PsA” or “patient with PsA” in clinical contexts
Reduce stigmatizing language
Support mental health care for patients
Use mindful person-first language
Instead of referring to someone as an “PsA patient” use “person living with PsA” or “patient with PsA” in clinical contexts
Avoid stereotypes and generalizations
Refrain from using terms like “non-compliant,” or “poor historian” that can perpetuate negative stereotypes
Assign blame to the system or disease, not the individual
For example: “patient chooses” rather than “refuses”; “Medication failed in this person with PsA” rather than “patient failed this medication”; “the symptoms of PsA are causing difficulty” instead of “the patient is not managing their condition properly”
Eliminate derogatory terms or negative connotations
For example: convict, prostitute, alien, sickly, weak, burden
Think critically and be intentional about using social identifiers
For example: race, socioeconomic status, and language don’t belong in the one-liner
State the facts–avoid interpretations
For example: “patient alleges/claims 10/10 pain”
Use inclusive language
For example: “patient uses a wheelchair” rather than “wheelchair-bound”
Use the active voice
For example: “I prescribed biologics” rather than passive language “Biologics were prescribed by me”
Avoid misusing quotes or exaggerating descriptions
For example: “The patient reported experiencing significant pain” instead of “patient is having ‘horrible’ pain”
Compared to the general population, people with PsA have a higher lifetime rate of psychiatric disorders such as depression and anxiety4. Ensuring adequate attention is given to a patient’s mental health is a vital part of providing quality care.
Key consideration for mental health support:
Network with mental health services
Refer people living with PsA to mental health support services.
Monitor emotional well-being
Track patients’ emotional well-being as well as their physical symptoms.
Connect patients to PsA support groups
Help facilitate connections to PsA support groups for shared experiences and support.
Provide guidance on expectations
Help patients understand what to expect and what’s next. Helping resolve the unknown may help patients feel less anxious.
Asking about mental health in a patient-centered way requires sensitivity and awareness of how perceptions of mental health can differ.
Below are some thoughtful, open-ended questions clinicians can ask to ensure a patient-centered discussion about mental health:
Can you tell me what’s been going on in your life lately that has been affecting your well-being?
What role does your family or community play in your mental health and well-being?
How do you understand the feelings or thoughts you’re experiencing? Are there specific words or terms in your language that describe what you’re going through?
How comfortable are you talking about your mental health with your friends or family? Are there certain things you might not feel comfortable sharing?
How can I best support you in your mental health journey? Are there specific things you need or want from me as a clinician?
Content informed and developed with input from people living with PsA and an expert steering committee. The items above are not an all-inclusive list and may not apply to all patients living with PsA.