Patient and caregiver resources
Below are some resources and information available for people with PsA. Explore these tools and resources to learn more about PsA and what to expect when you’re diagnosed, as well as treatments and how to conquer everyday challenges. Many of the resources are from the Arthritis Foundation and the National Psoriasis Foundation, two leading non-profit organizations focused on both research and patient support for PsA.
Newly diagnosed (available in Spanish)
A webpage from the Arthritis Foundation providing information for patients recently diagnosed with arthritis.
About psoriatic arthritis
A webpage from the National Psoriasis Foundation that provides general information about PsA, including symptoms, treatment, diagnosis, and life with PsA.
Healthy lifestyle habits when you have PsA (available in Spanish)
Created by the Arthritis Foundation, this webpage offers general lifestyle recommendations and information for people living with PsA.
Find a nutrition expert
Made available by the Academy of Nutrition and Dietetics, this database was created for patients to search and find credentialed nutrition and dietetics practitioners by location, specialty, language, or insurance, and payment options.
Dietary modifications
A webpage by the National Psoriasis Foundation with information on healthy eating for patients with PsA. This page provides an overview of different healthy eating approaches and a guide with steps patients can take to make healthy eating a part of their PsA management plan.
Supplement and herb guide for arthritis symptoms (available in Spanish)
A webpage from the Arthritis Foundation dedicated to the use supplements for PsA. This page provides an overview of the most popular supplements and herbs used for PsA.
Active and mindful lifestyles
A webpage from the National Psoriasis Foundation that provides general information about exercise and physical activity in PsA, including suggestions on how to get more physical activity.
Psoriatic arthritis and pregnancy (available in Spanish)
A webpage by the Arthritis Foundation that is dedicated to what patients should know if they are pregnant, planning to become pregnant and breastfeed. This page provides information on pregnancy planning, pregnancy, and after delivery.
Helpline (available in Spanish)
The Arthritis Foundation provides a helpline to call to provide support. Helpline representatives understand arthritis and have helped thousands of people.
Live yes! Connect group
An online group through the Arthritis Foundation that serves people living with PsA from across the country.
Support and community
The National Psoriasis Foundation provides information on finding a support group for individuals with PsA. This webpage emphasizes the importance of connecting with others who share similar experiences and many ways to get involved with the PsA community.
Paying for treatment
The National Psoriasis Foundation provides information on the cost roadblocks associated with psoriatic arthritis treatments and medications. This webpage provides information on Health Insurance, Medicare Resources, Financial Assistance, and Overcoming Common Insurance Hurdles.
Patient navigation center
The National Psoriasis Foundation resource free for anyone impacted by PsA, including caregivers. Navigators can help you: find a healthcare provider, learn about psoriatic disease and your treatment options, understand how health insurance works, learn about programs that may lower the cost of treatments, and connect patients and caregivers to other people living with psoriatic disease.
Questions to ask your doctor
Created by the Arthritis Foundation, this webpage helps individuals prepare for and get the most out of their medical appointments related to PsA. The guide offers sample questions to ask when talking with a doctor such as questions about the disease, the treatments, the care team, and how to cope.
Open Path
A non-profit organization that offers a platform to find therapists providing affordable in-office and online psychotherapy sessions for patients who are uninsured or underinsured. The page includes a search function to find a therapist by entering a city or zip code.
Findtreatment.Gov
Findtreatment.Gov is a confidential and anonymous search tool for individuals looking for treatment options for mental health and substance use disorders within the united states and its territories.
7 Cups
An online service offering emotional support through connections with trained volunteer listeners and free 24/7 chat in support chat rooms.
National Alliance on Mental Illness helpline
A free, nationwide peer-support service providing information, resource referrals and support to people living with a mental health condition, their family members and caregivers, mental health providers, and the public.
Crisis text line
Text home to 741741 from anywhere in the united states, anytime. Crisis text line is here for any crisis. A live, trained crisis counselor receives the text and responds, all from a secure online platform.
The Trevor Project Trevor Lifeline
If you or someone you know needs help or support, the Trevor Project’s trained crisis counselors are available 24/7 at 1-866-488-7386, via chat at thetrevorproject.org/get-help, or by texting start to 678678.
These apps that may help with mental health and stress management through guided medications, coaching, stretching and breathing exercises, mood tracking, and games:
Headspace
Offers access to therapy, guided meditations and mindfulness techniques to help manage stress and improve sleep.
Calm
Provides relaxation resources, including meditation, sleep stories, and soothing music for stress reduction.
Insight timer
Features a vast library of free guided meditations and talks from mindfulness experts.
Espanol.arthritis.org
Spanish speakers can access information and resources about their diagnosis, treatment options and more in Spanish from the Arthritis Foundation.
Háganos una pregunta
The National Psoriasis Foundation offers a Spanish-language option for patients to speak with a Patient Navigator by calling (800) 723-9166 and selecting option 1.
I am supporting someone with psoriatic disease
A National Psoriasis Foundation site dedicated to caregivers.
Care partners guide
A free resource from National Psoriasis Foundation providing tips on being a successful care partner, attending medical appointments, emotional health of care partners, and opportunities for care partner self-care.
One to one
Peer support for caregivers by the National Psoriasis Foundation offered via phone, email or text.
Family caregiving
A webpage from the American Association of Retired Persons (AARP) that provides a variety of resources to help family caregivers navigate their role and responsibilities.
National Alliance for Caregiving (NAC)
A catalyst for change, transforming how the united states recognizes, supports, and values the 53 million family caregivers providing complex care. Through our nationally recognized caregiving research and advocacy, we drive policy, system, and culture change to elevate family caregivers as a national priority. We foster partnerships across aging, disability, healthcare, philanthropy, and the private sector with the goal of making family caregiving more sustainable, equitable, and dignified.
Caregiver Action Network (CAN)
The nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. Spanish (and other languages) version is accessible by selecting it from the drop-down menu in the bottom left corner.
Family Caregiver Alliance (FCA)
FCA provides services to family caregivers of adults with physical and cognitive impairments, including assessment, care planning, direct care skills, wellness programs, respite services, and legal/financial consultation vouchers.
The Caregiver Space
The Caregiver Space offers a free, supportive environment where you can openly discuss the challenges of caring for someone with a serious disability or illness. Their community is a welcoming space to ask questions, share experiences, receive honest feedback, or simply express your feelings.
Training in health literacy, plain language, and culture and communication
Culturally and linguistically appropriate services (CLAS) training