Patient-focused resources

Designed by gastroenterologists for patients; includes information on IBD, diet/nutrition, procedures, and preparing for GI visits

My IBD Life: Patient resources for planning life with IBD, discussing IBD, and more

Conversation guide with healthcare providers for patients

Organization that “unites the IBD community to promote public awareness about Crohn’s & Colitis, to fund research for new treatments and cures, and to support patients and their families living with these chronic illnesses.”

NeedyMeds

Crohn’s & Colitis Foundation: Managing the Cost of IBD

Crohn’s & Colitis Foundation: Steps in Shared Decision-Making for IBD

IBD Patient Decision Aid: A resource for people living with moderate to severe IBD who are thinking about advanced therapies (eg, biologics or targeted synthetic small molecules) as a treatment option.

Patient guide example (by Color of Gastrointestinal Illnesses)

IBDMoms: Patient-focused resource, created by moms with IBD for moms affected by IBD as patients or care partners; provides education, resources, and social events.

Color of Gastrointestinal Illnesses: Organization whose mission is “to improve the quality of life for Black, Indigenous, and other people of color (BIPOC) who are affected by IBD, digestive disorders, and associated chronic illnesses; through community, research, education, and advocacy.”

South Asian IBD Alliance: A patient-clinician collaborative that “aims to create resources, research, and education for IBD patients and healthcare providers of South Asian origin to minimize disparities, dispel stigma, promote early diagnosis, and improve access to treatment.”