IBD Primary Care Toolkit

IBD background

IBD is a term used to describe conditions characterized by chronic inflammation in the gastrointestinal (GI) tract.

Common types: Crohn’s disease (CD) and ulcerative colitis (UC)

Person placing hands in a circular shape around their abdomen
Prevalence

Prevalence

Between 2 and 3 million people in the United States have IBD. Prevalence is increasing among both older adults and racial and ethnic minority groups.

Management

Management

As a complex and chronic condition, IBD requires care through a multidisciplinary model to help improve outcomes and quality of care.

Primary care role

Primary care role

Clinicians in primary care play a large role in IBD diagnosis and management, particularly when in partnership with gastroenterologists.

Opportunity for primary care to help improve IBD care

Toolkit purpose

Designed to empower and educate primary care clinicians on IBD including: IBD diagnosis, management, and follow-up care.

Diagnosis delays

Diagnosis delays

Evidence suggests there may be significant lag times between the onset of symptoms for IBD and diagnosis.

Front-line role

Front-line role

Primary care clinicians have a high likelihood of being the first clinicians to evaluate patients with symptoms suggestive of IBD.

Long-term management

Long-term management

Primary care clinicians can help in the long-term management of IBD, including in areas such as:

  • Medication adherence

  • Monitoring treatment efficacy

  • Preventative health maintenance (eg, vaccines, cancer screenings)

Healthcare professionals gathered around a table with laptops open

IBD patient populations

Populations at risk for IBD

Age and sex

Age and sex

IBD occurs in people of all ages, and there is no difference in prevalence by sex.

Diagnosis age

Diagnosis age

Most people with IBD are diagnosed between the ages of 15-29, however, IBD can happen at any time and 10-15% of new diagnoses occur in those >60 years.

Race and ethnicity

Race and ethnicity

IBD occurs in people of all races and ethnicities, and its prevalence is increasing around the globe.

Evolution of the patient population at risk for IBD

Recent trends

Recent trends

Increased prevalence in older adults and in diverse racial and ethnic groups, such as Black and Hispanic persons.

Clinical awareness

Clinical awareness

This is important as clinicians may not be aware of this increase in prevalence of IBD in Black and Hispanic persons and therefore may be less likely to consider IBD as a possible diagnosis in these individuals, which may lead to a delay in diagnosis.

IBD Primary Care Toolkit

Johnson & Johnson and its affiliates provided financial sponsorship for this toolkit. They were not members of the steering committee. The steering committee approved the suggested edits made by Johnson & Johnson and its affiliates to provide accuracy and balance.


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